PVS NETWORK
  • Home
    • About PVS Network
    • Participating institutions
    • Creating Hope
  • Parents
    • About PVS
    • Clinical tests >
      • Echocardiography
      • CT Scan
      • MRI Scan
      • Heart catheterization
      • Lung perfusion scan
    • Treatment options >
      • Surgery
      • Catheter based intervention
      • Medical therapy
      • Lung transplant
      • Palliative care
    • Frequently asked questions
    • Links
  • Clinicians
    • PVS: outcomes and pathophysiology
    • Clinical Care for Children with PVS >
      • Treatment options >
        • Surgical Options
        • Catheter based interventions
        • Medical therapies
        • Transplantation
        • Palliative Care
      • Surveillance imaging
    • Clinical Scenarios: tough decisions
    • Clinical Trials and Research
  • Research
    • PVS Network Registry >
      • PVS Registry Image Guide
      • PVS data collection forms 2017
    • PVS Clinical Research
    • Recently Published
  • Contact Us
    • Ways to Donate
    • Links to Related Sites
    • Newsletters
  • PVS Awareness
    • T- shirt Campaign
    • Knowledge is Hope
    • TEAM PVS!
    • Resolution
    • Superhero
    • Donate Life Month
    • Supermom
    • Sibling
    • PVS Aware
    • Life is a beautiful ride

The PVS Network Registry

This is a multi-centre registry that collects clinical information about children with pulmonary vein stenosis. We collect information about the number of pulmonary veins involved, information about the types of interventions, all clinical imaging tests and information about important outcomes.

​We will use this information to understand clinical practices at different institutions and how we can improve care for children with pulmonary vein stenosis.

We will also use this information to understand outcomes in children with different number of veins affected by  pulmonary vein stenosis.

​We hope that through this important collaboration, we will be able to understand factors that increase risk and understand important variables that predict progression.

​Contact pvs.network@sickkids.ca for more information

The PVS Network Registry Quick Facts

Picture
​
  • Data is entered into a REDCap database , which uses a secure server
  • All the data is analyzed at the Hospital for Sick Children in Toronto, Canada
  • ​C​urrently there are over 18 institutions across North America contributing data
  • Funding is supplied by a generous donations by individuals invested in improving knowledge about pulmonary vein stenosis and grants from the Hospital for Sick Children.​​ 

Proudly powered by Weebly
  • Home
    • About PVS Network
    • Participating institutions
    • Creating Hope
  • Parents
    • About PVS
    • Clinical tests >
      • Echocardiography
      • CT Scan
      • MRI Scan
      • Heart catheterization
      • Lung perfusion scan
    • Treatment options >
      • Surgery
      • Catheter based intervention
      • Medical therapy
      • Lung transplant
      • Palliative care
    • Frequently asked questions
    • Links
  • Clinicians
    • PVS: outcomes and pathophysiology
    • Clinical Care for Children with PVS >
      • Treatment options >
        • Surgical Options
        • Catheter based interventions
        • Medical therapies
        • Transplantation
        • Palliative Care
      • Surveillance imaging
    • Clinical Scenarios: tough decisions
    • Clinical Trials and Research
  • Research
    • PVS Network Registry >
      • PVS Registry Image Guide
      • PVS data collection forms 2017
    • PVS Clinical Research
    • Recently Published
  • Contact Us
    • Ways to Donate
    • Links to Related Sites
    • Newsletters
  • PVS Awareness
    • T- shirt Campaign
    • Knowledge is Hope
    • TEAM PVS!
    • Resolution
    • Superhero
    • Donate Life Month
    • Supermom
    • Sibling
    • PVS Aware
    • Life is a beautiful ride