The PVS Network Registry
This is a multi-centre registry that collects clinical information about children with pulmonary vein stenosis. We collect information about the number of pulmonary veins involved, information about the types of interventions, all clinical imaging tests and information about important outcomes.
We will use this information to understand clinical practices at different institutions and how we can improve care for children with pulmonary vein stenosis.
We will also use this information to understand outcomes in children with different number of veins affected by pulmonary vein stenosis.
We hope that through this important collaboration, we will be able to understand factors that increase risk and understand important variables that predict progression.
Contact pvs.network@sickkids.ca for more information
We will use this information to understand clinical practices at different institutions and how we can improve care for children with pulmonary vein stenosis.
We will also use this information to understand outcomes in children with different number of veins affected by pulmonary vein stenosis.
We hope that through this important collaboration, we will be able to understand factors that increase risk and understand important variables that predict progression.
Contact pvs.network@sickkids.ca for more information
