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The role of palliative care for children with pulmonary vein stenosis

Palliative care is often associated with end of life care, where there is no longer any active treatment. While this is an important part of palliative care, it is not the only role of a palliative care team. Palliative care or advanced care teams can play an important supportive role while children are undergoing active treatment.

​Palliative care teams will help with providing support to families who are caring for children with pulmonary vein stenosis. They can provide suggestions to help with symptom management. They can also help be part of decisions regarding treatment options.

​If a family decides that palliative care is the best option, the palliative care team can help to provide medicines to help with symptoms and to help families find hospice care and other services that can support the family.

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Copyright © 2015
  • Home
    • About PVS Network
    • Participating institutions
    • Creating Hope
  • Parents
    • About PVS
    • Clinical tests >
      • Echocardiography
      • CT Scan
      • MRI Scan
      • Heart catheterization
      • Lung perfusion scan
    • Treatment options >
      • Surgery
      • Catheter based intervention
      • Medical therapy
      • Lung transplant
      • Palliative care
    • Frequently asked questions
    • Links
  • Clinicians
    • PVS: outcomes and pathophysiology
    • Clinical Care for Children with PVS >
      • Treatment options >
        • Surgical Options
        • Catheter based interventions
        • Medical therapies
        • Transplantation
        • Palliative Care
      • Surveillance imaging
    • WEBINAR SERIES
    • Clinical Trials and Research
  • Research
    • PVS Network Registry >
      • PVS Registry Image Guide
      • PVS data collection forms 2017
    • PVS Clinical Research
    • Recently Published
  • Contact Us
    • Ways to Donate
    • Links to Related Sites
    • Newsletters
  • PVS Awareness
    • T- shirt Campaign
    • Knowledge is Hope
    • TEAM PVS!
    • Resolution
    • Superhero
    • Donate Life Month
    • Supermom
    • Sibling
    • PVS Aware
    • Life is a beautiful ride