PVS NETWORK
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NEED

Pulmonary vein stenosis (PVS) is a rare disease affecting veins that allow blood to return from the lungs into the heart.

​Many children with a diagnosis of pulmonary vein stenosis lose the battle against this progressive disease.
​
​There is still a lot to learn about this disease, and there is an urgent need to find effective therapies to treat this disease.

COLLABORATION

The PVS Network is a community of dedicated health care professionals dedicated to improving outcomes for children with PVS.

Multiple institutions across North America are working together to create more knowledge  and understand how best to treat children with pulmonary vein stenosis.
​
Within each institution, there are clinicians from different disciplines working together to improve care. These include cardiologists, respirologists, cardiac surgeons, intensive care specialists, specialized nurses and social workers.

CREATING HOPE

The main goal of the PVS Network is to advance research and clinical care for children with pulmonary vein stenosis. We will try to achieve this goal:

...through increased understanding

​We are creating a large multi-institutional registry to understand current treatment practices, risk factors and outcomes for children with pulmonary vein stenosis.

...through improved clinical care

​ We hope that the PVS Network registry will help increase our understanding of this disease. Through enhanced collaboration among institutions, we will improve treatment strategies available for children with pulmonary vein stenosis.

...through new research

​The collaborative network will strive to advance research focused on pulmonary vein stenosis by identifying areas of interest and linking research communities between institutions. Read about ongoing research on our PVS research page.

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Copyright © 2015
  • Home
    • About PVS Network
    • Participating institutions
    • Creating Hope
  • Parents
    • About PVS
    • Clinical tests >
      • Echocardiography
      • CT Scan
      • MRI Scan
      • Heart catheterization
      • Lung perfusion scan
    • Treatment options >
      • Surgery
      • Catheter based intervention
      • Medical therapy
      • Lung transplant
      • Palliative care
    • Frequently asked questions
    • Links
  • Clinicians
    • PVS: outcomes and pathophysiology
    • Clinical Care for Children with PVS >
      • Treatment options >
        • Surgical Options
        • Catheter based interventions
        • Medical therapies
        • Transplantation
        • Palliative Care
      • Surveillance imaging
    • WEBINAR SERIES
    • Clinical Trials and Research
  • Research
    • PVS Network Registry >
      • PVS Registry Image Guide
      • PVS data collection forms 2017
    • PVS Clinical Research
    • Recently Published
  • Contact Us
    • Ways to Donate
    • Links to Related Sites
    • Newsletters
  • PVS Awareness
    • T- shirt Campaign
    • Knowledge is Hope
    • TEAM PVS!
    • Resolution
    • Superhero
    • Donate Life Month
    • Supermom
    • Sibling
    • PVS Aware
    • Life is a beautiful ride