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For Clinicians: resources for pulmonary vein stenosis

Pulmonary vein stenosis can be a frustrating disease, as many patients have a poor prognosis despite treatment.  The high mortality, heterogeneous presentation  and rare occurrence of the disease makes it difficult at an individual and institutional level to refine treatment approaches.

​Click on the links below to view frequent clinical questions regarding disease pathogenesis, surveillance and treatment options,  review expert approaches to selected cases, links to recently published articles and enrolling clinical trials

PVS: outcomes and pathophysiology​

Clinical Care for Children with PVS​

Clinical Scenarios: tough decisions​

Clinical Trials and Research​

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  • Home
    • About PVS Network
    • Participating institutions
    • Creating Hope
  • Parents
    • About PVS
    • Clinical tests >
      • Echocardiography
      • CT Scan
      • MRI Scan
      • Heart catheterization
      • Lung perfusion scan
    • Treatment options >
      • Surgery
      • Catheter based intervention
      • Medical therapy
      • Lung transplant
      • Palliative care
    • Frequently asked questions
    • Links
  • Clinicians
    • PVS: outcomes and pathophysiology
    • Clinical Care for Children with PVS >
      • Treatment options >
        • Surgical Options
        • Catheter based interventions
        • Medical therapies
        • Transplantation
        • Palliative Care
      • Surveillance imaging
    • Clinical Scenarios: tough decisions
    • Clinical Trials and Research
  • Research
    • PVS Network Registry >
      • PVS Registry Image Guide
      • PVS data collection forms 2017
    • PVS Clinical Research
    • Recently Published
  • Contact Us
    • Ways to Donate
    • Links to Related Sites
    • Newsletters
  • PVS Awareness
    • T- shirt Campaign
    • Knowledge is Hope
    • TEAM PVS!
    • Resolution
    • Superhero
    • Donate Life Month
    • Supermom
    • Sibling
    • PVS Aware
    • Life is a beautiful ride