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Picture



Knowledge Empowers

Knowledge is Hope



As a parent, receiving a diagnosis of PVS for your child can be filled with uncertainty. Uncertainty of what is known about the disease, what PVS means for your child and what treatments are available. While uncertainty always exists, having information available to navigate this journey can be stabilizing and allow for advocacy. Creation of a medical community built on collaboration and sharing of knowledge will  empower solutions.

​Our goal is create awareness for PVS and work as a community of parents, children, clinicians and researchers to advance knowledge and care for children with PVS.

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Over the next year, graphic images will be available every 6-8 weeks. Download them, share them, like them on social media.  Increasing awareness of PVS is an important step to advancing care for children with PVS.

To start the campaign, we will echo the words of a brave parent  ‘Knowledge is Power’

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Copyright © 2015
  • Home
    • About PVS Network
    • Participating institutions
    • Creating Hope
  • Parents
    • About PVS
    • Clinical tests >
      • Echocardiography
      • CT Scan
      • MRI Scan
      • Heart catheterization
      • Lung perfusion scan
    • Treatment options >
      • Surgery
      • Catheter based intervention
      • Medical therapy
      • Lung transplant
      • Palliative care
    • Frequently asked questions
    • Links
  • Clinicians
    • PVS: outcomes and pathophysiology
    • Clinical Care for Children with PVS >
      • Treatment options >
        • Surgical Options
        • Catheter based interventions
        • Medical therapies
        • Transplantation
        • Palliative Care
      • Surveillance imaging
    • Clinical Scenarios: tough decisions
    • Clinical Trials and Research
  • Research
    • PVS Network Registry >
      • PVS Registry Image Guide
      • PVS data collection forms 2017
    • PVS Clinical Research
    • Recently Published
  • Contact Us
    • Ways to Donate
    • Links to Related Sites
    • Newsletters
  • PVS Awareness
    • T- shirt Campaign
    • Knowledge is Hope
    • TEAM PVS!
    • Resolution
    • Superhero
    • Donate Life Month
    • Supermom
    • Sibling
    • PVS Aware
    • Life is a beautiful ride