Knowledge is Hope
As a parent, receiving a diagnosis of PVS for your child can be filled with uncertainty. Uncertainty of what is known about the disease, what PVS means for your child and what treatments are available. While uncertainty always exists, having information available to navigate this journey can be stabilizing and allow for advocacy. Creation of a medical community built on collaboration and sharing of knowledge will empower solutions.
Our goal is create awareness for PVS and work as a community of parents, children, clinicians and researchers to advance knowledge and care for children with PVS.
Over the next year, graphic images will be available every 6-8 weeks. Download them, share them, like them on social media. Increasing awareness of PVS is an important step to advancing care for children with PVS.
To start the campaign, we will echo the words of a brave parent ‘Knowledge is Power’