Palliative Care
Early involvement of advance care teams or palliative care is essential to support families caring for a child with progressive pulmonary vein stenosis. Palliative care teams can provide longitudinal support, medical treatments to minimize symptoms of tachypnea and help with hospice and respite care options. Most families, when contemplating transplantation, will connect with palliative care teams as waitlist times can be long and clinical deterioration unpredictable.